Tag Archives: St George’s Hospital

Food Glorious Food

We strongly feel that our goal is to improve the life of children staying in hospitals. Sometimes that means spending money on buying things that make life better, but sometimes it involves putting pressure (gentle or otherwise) on authorities to make changes that we feel are important. All of the trustees in The Christian Blandford Fund, Peter, Claudia, Amy and Darren, have had children who have spent considerable time in NHS hospitals and have strong views of how to help others in that situation. One of our big concerns was the quality of the food in the wards at St George’s. At the Royal Marsden there was a wonderful chef and an assistant who took individual orders from each of the kids and made it freshly for them. At St George’s there was a trolley with pre cooked and reheated food similar to what you would get in an airplane, unsurprisingly much of the food was left untouched by the kids.

For some reason this has been a battle that has taken a long time to win, but we are delighted to have finally made some progress. Together with Samuel’s Charity we were ready to pay for the cost of having a couple of hostesses to take the children’s orders, so the food could be prepared in the kitchens. The hospital, fortunately, managed to find the funds from elsewhere and the quality of the food is now considerably improved. We are delighted, well done to Martin, Samuel’s dad, who did so much to push this forward.

There are big plans afoot to make improvements at St George’s and we hope that our voice continues to be heard so the things that we feel need to be improved upon are prioritised.

Food

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Easter Monday (and my sister Sam’s Birthday)

Christian has been pretty unwell all weekend. His temperature has got up to 40.3 C, this has made him very uncomfortable and he has had vomiting and diarrhea. They are not sure if it is due to a Bacterial infection or a Virus but his CPR count has risen to 250 which, apparently, is a sign of bacterial infection. They have added a third intravenous antibiotic to help combat it.

Claudia seems to be suffering from the same bug as Christian has and to top it all off Henry did a Superman off a climbing frame and had to go for an X-Ray at A&E to make sure it wasn’t fractured.

Christian seems to be getting better, his temperature is not quite so high and he’s a bit happier. Wendy (Nanna) is staying with him at St George’s tonight to give me a break and Bob and Marc (Claudia’s dad and brother) are looking after him tomorrow while I go to work.

Christian is also getting GCSF which boosts his neutrophils so hopefully he will soon be better equipped to fight the infection.

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Easter Saturday

We got home from The Royal Marsden Last Sunday evening. Christian has had a cold all week so it was inevitable that when his neutrophils came down to zero we would be back in the Hospital. He spiked a temperature this afternoon and Claudia brought him to St George’s. As usual he is on first line antibiotics until they can rule out a bacterial infection. He is currently having a blood transfusion as he HB levels are also very low.

A few people have asked about how Henry is coping with all of this. So far, I reckon he’s done better than any of us. We got his school report last week and amongst lots of good comments it said he’s popular with his friends and his teachers and is a pleasure to teach. He also got an A++ for arithmetic and an A+ for drama where is he is a natural unless he is asked to mime…

KONICA MINOLTA DIGITAL CAMERA

KONICA MINOLTA DIGITAL CAMERA

 

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At St George’s

Christian had been given his antibiotics and a blood transfusion and he was all ready to go home. The community nurses would finish the course of antibiotics by visiting us once a day at home. Claudia then noticed that the scar on his leg were the autopsy was done was red and inflamed. We showed the doctors who said that, as long as his temperature didn’t spike he would be allowed home as the antibiotics would sort it out.

Right on cue, Christian started to look a bit flushed, they took his temperature and it was 38.5. He will now probably have to stay for 48 hours as they blitz him with “first line” antibiotics, the one he was on before and two others.

He is, however, in fine spirits. It’s 8.45pm, he has finally stopped chatting and is peacefully asleep.

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St George’s

Christian’s Hickman line is red and sore, it is probably infected so we have brought him to St George’s. He is in good nature but is neutrapenic and his Hemoglobin levels are low so they have put him on antibiotics and he is going to have a blood transfusion.

If he remains happy and doesn’t spike a temperature we hope to take him home tomorrow.

St George’s have set up a credit card payment site for the Christian Blandford fund. If you wish to sponsor or have already pledged this is an efficient way to pay, they only charge 3% as opposed to the 10% justgiving charge.

If you forward me your confirmation e-mail from the donation I’ll be able to keep tally of what we have raised and I’ll add your name to list of generous donors.

Thanks again to all those who have sponsored so far, we are over the moon with how it’s going.

Finally I’ll leave you with the question, “Is the world ready for another super-hero?”

KONICA MINOLTA DIGITAL CAMERA

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Still at St George’s

TWe were hoping to come home today but Christian isn’t well enough. He still has a slight temperature and his blood counts are low. He had a platelets transfusion and had a bad reaction to it which made him itchy and uncomfortable, He’s been given piriton which seems to have worked and is now sleeping peacefully.

I got an E-mail today from the organiser of the run and there are only 100 places left. So if you wish to run and have not entered yet please do so now.

Could you please tell me if you have entered and are raising money. All the people I know about are also listed on this page.

If you are planning on sponsoring and haven’t done so already please send me a pledge by e-mail, I’ll chase up payment out later! Again all the sponsors I know about are listed in the yellow box on the right.

If you are not running please consider coming along on the 4th March and cheering us all on. It should be great fun day out.

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St George’s

Christian has been on very good form for the last couple of weeks. On Wednesday he even went into nursery for the morning, they have made of photo montage for the wall of his day in!

The last few days he has had a bit of a cold and his temperature spiked to 38.5 on Saturday afternoon. Because it was a week after chemo we had to assume he was neutrapenic and took him down to St George’s. One of the children at nursery came down with Chickenpox later in the week so Christian had to have an injection to protect him as, even though he has already had Chickenpox, the chemo will have killed his resistance to it.

He has probably got a viral cold which is relatively harmless, but they have to follow protocol and treat it as an antibacterial infection. He is on intravenous antibiotics and they will keep him in for 48 hours while they try and grow cultures on a blood sample. If nothing is grown in that time and he doesn’t get another temperature and he seems well in himself, he will probably be allowed home.

Danny, Claudia’s sister, took some photos of Christian last week while he was having his stem cell harvest. Here is one…

stem cell

Dans is off to Montenegro to turn around the local property market. Our boys are really going to miss her. Here she is doing what she does best, making them laugh and spoiling them rotten…

KONICA MINOLTA DIGITAL CAMERA

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Scan Results

KONICA MINOLTA DIGITAL CAMERA

Christian had a temperature on Tuesday so we have spent the last couple of days at St. George’s. It looks like it was an infection in his leg that caused the temperature. He has been on intravenous antibiotics which have done the trick and has been allowed home today. He will need to continue the course of antibiotics until next week but, as it’s a once a day dose, it can be given by the community nurses at home.

The bone scan which was due tomorrow was brought forward to today and he and I were taken down to the Royal Marsden for it by ambulance. It was very exciting for both of us…

We are seeing Kathy Pritchard Jones tomorrow to discuss his treatment and get the results of the bone scan. Kathy did pop into the radiology department this afternoon and at first glance, the scans looked good with no sign of the cancer spreading and a good reaction to the chemo so far. Good news at last…

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Neutropenia

Christian and I are currently at St. George’s. He got a temperature yesterday and as he is very neutropenic he can’t fight infection. He is on antibiotics and is happy so I am hoping we get home later today or tomorrow. His Hickman line has become slightly dislodged so they struggled to get blood out of it last night but they got there in the end. He may need that replaced soon.

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Thank you

Sunday 23rd October

Christian had his last chemo three weeks ago. He got a temperature on Thursday evening when he was still neutropenic from the chemotherapy. We took him into St George’s and he has spent the weekend in and out, getting regular intravenous antibiotics. The doctors think that it is probably viral and will therefore not be a problem for his body to fight but it takes 2-3 days to discover if an infection is bacterial. The protocol is to treat it as though it were bacterial (hence the antibiotics) until proven otherwise. Hopefully by this evening no signs of bacteria on the blood samples taken on Thursday will mean that he is in the clear and we can stop the course of antibiotics.

He was quite poorly on Thursday but has been fine for the last couple of days. Hopefully this will be the last time that we have to go into hospital for something like this…

On a side note, it is very rewarding to go back to St George’s and speak to the nurses who are so happy with the money I was given as sponsorship. The money has not yet been spent but I am convinced that it will really help. Thanks again for your generosity.

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