Tag Archives: Henry

Food Glorious Food

We strongly feel that our goal is to improve the life of children staying in hospitals. Sometimes that means spending money on buying things that make life better, but sometimes it involves putting pressure (gentle or otherwise) on authorities to make changes that we feel are important. All of the trustees in The Christian Blandford Fund, Peter, Claudia, Amy and Darren, have had children who have spent considerable time in NHS hospitals and have strong views of how to help others in that situation. One of our big concerns was the quality of the food in the wards at St George’s. At the Royal Marsden there was a wonderful chef and an assistant who took individual orders from each of the kids and made it freshly for them. At St George’s there was a trolley with pre cooked and reheated food similar to what you would get in an airplane, unsurprisingly much of the food was left untouched by the kids.

For some reason this has been a battle that has taken a long time to win, but we are delighted to have finally made some progress. Together with Samuel’s Charity we were ready to pay for the cost of having a couple of hostesses to take the children’s orders, so the food could be prepared in the kitchens. The hospital, fortunately, managed to find the funds from elsewhere and the quality of the food is now considerably improved. We are delighted, well done to Martin, Samuel’s dad, who did so much to push this forward.

There are big plans afoot to make improvements at St George’s and we hope that our voice continues to be heard so the things that we feel need to be improved upon are prioritised.

Food

Posted in Blog, Things We've Done. Tagged with , , , .

Christmas gifts for the children at St George’s

We have had a great day handing out presents to the Children who are unfortunate enough to be at St George’s over Christmas. Christian was a fab Elf and we had lots of help from the wonderful staff at the hospital. Henry stepped in as official photographer and took some photos which are here. I have included a hi-res copy which parents can use for personal use as they wish, just press the download button on the photo you want.

 

Posted in Blog, Things We've Done. Tagged with , , , , , , , , , .

Christmas visit to St George’s

Just before Christmas, Christian, Peter and Henry went to St George’s again to be Santa and elves and hand out presents to children unfortunate enough to be in hospital during the festive period.

The Bowler family and the Hancox family did a great job of wrapping all the present and delivering them so they were ready for Santa to hand them out. This year we bought more than ever so plenty were left over for arrivals on or just after Christmas. Neil Berrecloth popped in to help and the play specialists, very efficient in sorting out the right presents for each child.

There are more photos on Facebook

The next day, I got this lovely e-mail

I just wanted to say “thank-you” on behalf of my son Alex, who received a lovely teddy. It really cheered him up, as did the visit from father Xmas and his little helper: his eyes lit up when he saw them (I think he was thinking “oh no, the door’s opening, someone in a uniform is coming to do something nasty to me”) and was lovely for his dad and mum to see. As you can appreciate, being in an isolation room at Xmas is pretty grim for a kid. Alex has been poorly all his life and is a “regular” at St George’s, despite living 60 miles away in West Sussex. The distance makes it particularly difficult as his brother William, who he is very close to, has to stay at his Grandma’s during his many stays at St George’s, so we are all split up as a family. Luckily, we were put on “home leave” for Xmas but must return next Friday.

I think your charity is brilliant. As soon as I read the poster in the posh new parents room I could tell that the person who wrote it had a real insight into life for kids and their families in this situation that only personal experience (unfortunately) can bring.

Merry Xmas to you all and keep up the good work!

Santa and the elves

 

Posted in Blog, Things We've Done. Tagged with , , , , , , , .

Father Christmas Visit to St George’s

Peter put on a Father Christmas outfit and went to St George’s to hand out presents with his two little helpers Henry and Christian.

Santa and his little helpers
There are more photos here. Some parents wanted copies of the photos, they can be ordered directly from photobox. If you have not used them before send me an e-mail at peter@theblandfords.com and I’ll send you an offer code for 50 free prints. A big thank you to Hugh Miller, the very talented photographer who took the photos for us and donated his time and expertise.

It was a lot of fun, made easy by the very organised play specialists at St George’s. Thank you also to Darren, Corrine, Emily and Amy for collecting wrapping and delivering the presents to the Hospital, they truly did all the hard work!

The presents were all paid for from The Christian Blandford Fund and we are very grateful to the enormous support that we receive from the friends that support us.

It was great to see Maz, one of the very skillful nurses at St George’s using the portable ultra sound machine that we supplied. At over £20,000 it is not in the NHS budget but makes inserting needles into children’s veins a much less traumatic and painful experience. Something we felt strongly was worth our investment!

So we can continue this kind of work, please consider us if you are raising money for a charity event or are about to make a festive charity donation. Thank and Merry christmas and a Happy and Healthy New Year!

Posted in Blog, Christian's Story, Things We've Done. Tagged with , , , , , , , , .

Healthy and Delicious Pasta Sauce

Christian, Henry and I decided to have some fun promoting the Christian Blandford Fund

Posted in Blog, Christian's Story, Fund Raising. Tagged with , , , , , .

Home!

We have been home for 10 days now and Christian is improving day by day although he is still a bit weak. We are hoping to be able to have his Hickman Line removed after radiotherapy and before we go to Spain mid July so he will be able to swim in the pool!

KONICA MINOLTA DIGITAL CAMERA

Posted in Blog, Christian's Story. Tagged with , , , .

Aunty Danny’s Birthday

We met with Kathy Pritchard Jones, Christian’s consultant yesterday. We have had various tests done this week ahead of the intensive chemo next week. All the results were as we hoped, with no spreading of the cancer to any other bones in the body. We are being admitted to the Marsden on Wednesday 25th, Christian will have a daily dose of the same two drugs that he has already taken as well as a one off intensive dose of a different one. He will need an NG tube in his nose as he will be very nauseous and will probably not want to eat or take any of the medicines that he will need, that will probably be put in on Wednesday.

We also discussed the next stage of his treatment that will be radiotherapy, he’ll need a daily dose to his leg for two weeks. As he is unlikely to stay still it means that he’ll need a general anesthetic each time. The effected area is not close to the growth plate of the bone but there is still a danger that it may slow down the growth in that leg.

The boys recorded a message for Favourite Auntie Danny

Posted in Blog, Christian's Story. Tagged with , , , , , .

Easter Monday (and my sister Sam’s Birthday)

Christian has been pretty unwell all weekend. His temperature has got up to 40.3 C, this has made him very uncomfortable and he has had vomiting and diarrhea. They are not sure if it is due to a Bacterial infection or a Virus but his CPR count has risen to 250 which, apparently, is a sign of bacterial infection. They have added a third intravenous antibiotic to help combat it.

Claudia seems to be suffering from the same bug as Christian has and to top it all off Henry did a Superman off a climbing frame and had to go for an X-Ray at A&E to make sure it wasn’t fractured.

Christian seems to be getting better, his temperature is not quite so high and he’s a bit happier. Wendy (Nanna) is staying with him at St George’s tonight to give me a break and Bob and Marc (Claudia’s dad and brother) are looking after him tomorrow while I go to work.

Christian is also getting GCSF which boosts his neutrophils so hopefully he will soon be better equipped to fight the infection.

Posted in Blog, Christian's Story. Tagged with , , , , .

Easter Saturday

We got home from The Royal Marsden Last Sunday evening. Christian has had a cold all week so it was inevitable that when his neutrophils came down to zero we would be back in the Hospital. He spiked a temperature this afternoon and Claudia brought him to St George’s. As usual he is on first line antibiotics until they can rule out a bacterial infection. He is currently having a blood transfusion as he HB levels are also very low.

A few people have asked about how Henry is coping with all of this. So far, I reckon he’s done better than any of us. We got his school report last week and amongst lots of good comments it said he’s popular with his friends and his teachers and is a pleasure to teach. He also got an A++ for arithmetic and an A+ for drama where is he is a natural unless he is asked to mime…

KONICA MINOLTA DIGITAL CAMERA

KONICA MINOLTA DIGITAL CAMERA

 

Posted in Blog, Christian's Story. Tagged with , , , .

Bone Biopsy

We took Christian to Stanmore Orthopedic Hospital today for another bone biopsy. It all went fine and the surgeons are confident that they got a decent sample this time. He is a bit sore but was allowed home. The results may take over a week but we are (sort of) hoping they come quicker so the treatment can begin.

Peter Blandford's photo

Posted in Blog, Christian's Story. Tagged with , , , , .