Tag Archives: Christian’s Story

Stem Cell Harvest

Christian needs to have a stem cell harvest next week. It will involve him going into The Royal Marsden for a couple of days where he will get a new line fitted, unfortunately the Hickman Line will not work for this. They will take blood and draw stem cells which will then be frozen. Stem cells are special cells that can develop into either red cells, white cells or platelets and are normally produced by the bone marrow. When Christian has intensive chemotherapy in a few weeks he will not be able to produce any stem cells and they will use what they harvest next week. He should be in hospital for a couple of days.

At the moment he is in pretty good form and seems to have reacted better to the last dose of chemotherapy than the first. His mouth is getting sore which could be a sign that he is developing mucositis, this is when the lining of the digestive system becomes inflamed, a common symptom of chemotherapy. His leg pains seem to have also got more frequent recently. We have an appointment with Kathy Pritchard Jones on Friday so we can discuss some of these issues with her. They are trying to fit him in for a bone scan and an x-ray for Friday too.

The line up for the 10km run is looking good. Thanks very much to all those who have offered to sponsor so far and those who have are joining in. Even if you are not running please put a note in the diary and come along and cheer everybody along. All the team will have the same T-shirts so we should be easy to spot…

Posted in Blog, Christian's Story. Tagged with , , , .

Message From Claudia

7th January 2007

Claudia here! Peter has instructed me to write the latest update so please bare with me as I am under a lot of pressure to live up to the usual high standards! Christian was fine over New Year, if a bit tired and emotional (or was that me?!). His Hickman Line is working fine now, and after a couple of transfusions (platelet and blood) he was fit enough to go in for his chemo at the Royal Marsden on Tuesday January 2nd as an in patient for three days. This all went as normal and Christian was on pretty good form, until we went to leave on Thursday and he promptly threw up everywhere. I was worried they might want to keep us in, but he seemed fine after that so we were allowed to leave. He was sick again in the night, but since then the various anti-nausea drugs they gave us seem to have kicked in. For now he seems in good spirits and even wolfed down a massive plate of spaghetti with grated cheese followed by 2 yogurts for his tea – a proud mum moment so I asked Pete to take a photo of it!

KONICA MINOLTA DIGITAL CAMERA

As Pete mentioned in his e-mail he is arranging a 10K run on Sunday 4th March in Battersea. PLEASE do sign up for it – Even I am going to give it a go! All money raised goes towards the “St. George’s Charitable Foundation – Christian Blandford Paediatric Fund”. I can not tell you how much we (and other families) have benefited from the money that was raised in 2005 by all of you. The Pinkney Ward is now so much more comfortable! So, if like us you over indulged in too much food and wine over Christmas get your running kit on and start training!! Obviously no pressure, but you know our son is ill……………….

Posted in Blog, Christian's Story. Tagged with , , , , .

Christmas 2006

30th December 2006

Fortunately, Christmas was fairly peaceful. We had to visit the hospital every day in the morning to get some GCSF but that was much better than the 3 visits a day it looked at one point that we would be making. Christian’s hair started to fall out so we had to give him a haircut which he was a bit upset about. It didn’t seem to help when we told him that it looked like Daddy’s hair now. I can’t say I blame him. He still looks gorgeous though…

PICT0078-01

Posted in Blog, Christian's Story. Tagged with , , , .

Christmas Eve 2006

PICT0047-01

We have been in and out of St. George’s for the last few days getting antibiotics for Christian. He has also had GCSF to boost his neutrophils and a platelet transfusion as they were very low. The last couple of nights we have brought him home to sleep and yesterday he was home most of the day, returning to the hospital three times for his antibiotics. He had the last dose of that this morning and we are waiting to see what his blood results are to see whether he needs more GCSF.

Nanny and Grandad (June and Sandy) were here yesterday and the boys got their presents. Henry and I have been playing scalextrix all morning and Christian is very excited about his pink dancing car! it could be worse Danny was threatening me with buying him a pink fairy costume…

Merry Christmas from all of us and thank you for all of your support over the last few weeks. It really has made a massive difference.

 

Posted in Blog, Christian's Story. Tagged with , , , , .

Neutropenia

Christian and I are currently at St. George’s. He got a temperature yesterday and as he is very neutropenic he can’t fight infection. He is on antibiotics and is happy so I am hoping we get home later today or tomorrow. His Hickman line has become slightly dislodged so they struggled to get blood out of it last night but they got there in the end. He may need that replaced soon.

Posted in Blog, Christian's Story. Tagged with , , , .

A Spike

We came in to the Royal Marsden today for chemo and Christian temperature “spiked”. It would seem that he has an infection of some kind, probably viral. He has been given intravenous antibiotics and will need to stay overnight as the next dose is due at 1.00am. From tomorrow, it will be due every 24 hours so we may be able to go home.

Posted in Blog, Christian's Story. Tagged with , , , , .

Panto

We have just got back from the Royal Marsden. Christian had two different Chemotherapy drugs, Etoposide and Carboplatin. Carboplatin is given over an hour. Etoposide is also given as an hour drip but for 3 consecutive days, so he had it on Sunday, today and is due to go back for the last dose tomorrow.

Yesterday he had a great day, Henry came with us and the staff at the Royal Marsden put on a pantomime in the afternoon which was very good. Before anybody asks, I was not drafted in at the last moment…

Peter Blandford's photo

He slept well last night and has been very happy until the nausea kicked in this morning. We have a couple of different drugs which will, hopefully keep the nausea under control.

The next dose will come in the new year when he will have the Etoposide again, this time he will have it with Cyclophosphamide which has to be given overnight with a hydrating drip.

Posted in Blog, Christian's Story. Tagged with , , , , .

Confirmation

The biopsy result finally came through today and the growth in Christian’s leg was confirmed to be a reoccurrence of the Clear Cell Sarcoma.

We are taking him for his first Chemo on Sunday and he will stay in overnight so they can keep an eye on him. He may be home during the day on Monday but will have to go back for a second drug on Tuesday. His treatment will be every three weeks after that for 18 weeks followed by the “high dose” chemotherapy.

His is recovering from the biopsy but is still a bit sore and isn’t walking on it yet. Other than that he has been in very fine spirits.

Posted in Blog, Christian's Story. Tagged with , , .

Bone Biopsy

We took Christian to Stanmore Orthopedic Hospital today for another bone biopsy. It all went fine and the surgeons are confident that they got a decent sample this time. He is a bit sore but was allowed home. The results may take over a week but we are (sort of) hoping they come quicker so the treatment can begin.

Peter Blandford's photo

Posted in Blog, Christian's Story. Tagged with , , , , .

Bone Biopsy – Inconclusive

Christian had a Hickman Line fitted today, they also took a sample of bone marrow from his hips for testing. The operation went fine and he is now at home and relatively happy, if a bit concerned about the tube going into his chest…

The results from the Bone biopsy came back today and unfortunately they were “inconclusive”. This means that he will need to go back in and get another biopsy before treatment can begin, we haven’t got a date for this yet. Tomorrow we are going into the Royal Marsden to see Cathy Pritchard Jones who is back from holiday, she wants a couple of tests redone including the chest and leg x-rays. He is also going to get a kidney test (as one of the chemo drugs could effect it) and some blood tests.

On a lighter note, Henry lost his first tooth today. Photos to come…

Posted in Blog, Christian's Story. Tagged with , , , , .