Christian's Story

This is a copy of the original blog we wrote to keep our family and friends informed when Christian was being treated Christian was born on 19th July 2003 at …

The awful news

Christian had a lump in his tummy so we took him to Jake McKinnon, the pediatrician who originally diagnosed his reflux a year ago. He was immediately concerned …

First Visit to The Royal Marsden

We took him to the Marsden where we met Kathy Prichard-Jones, she is the professor of pediatric oncology and happens to run a large team of researchers who …

Biopsy

Keith Holmes performs a biopsy at St. George’s and fits a portacath (a direct access to the bloodstream for drugs and removal of blood). Christian woke up a bit …

An Infection

Went back to St. George’s because a urine infection had been detected from Monday’s tests. Antibiotics administered intravenously and orally. Christian a bit …

Good News and Bad

(Very) Good news – CT scan confirms no spreading of cancer into lungs or, in fact, anywhere else.(Slightly) Bad news – biopsy shows sign of muscle in the …

Chemotherapy effects

10.00am – Christian is not reacting very well to the chemotherapy. One of the side effects is a sore jaw, and this seems to be making him uncomfortable when he …

I stayed overnight with Christian at the Royal Marsden. The main concern is that he is not eating or drinking. In order for him not to get dehydrated he is on a …

A New Diagnosis

The good news is that he has started eating and drinking, mostly chocolate and biscuits, but at least he is feeding himself. We should be able to take him home …

At The Marsden

We are still hoping to take him home later today as he is off the drip. He has a bit of a rash on his face from an adverse reaction to the drug that he was …

Home

The doctors decided to keep Christian in for further examination as his blood pressure was a bit high. The good news is that he was released earlier today and …

Dora

I almost didn’t update the site today because there is no real news. But I guess you may like to know that Christian has been in a lovely mood for most of the …